Home again.....

What a summer we've had. It's not anything like what we planned or imagined, but it's what we got. I can't believe how much has happened and changed in the last 6 weeks.

Here is Maddox on July 23rd, just after returning from his first open heart surgery. He was 7 days old.

And here is our family on August 23rd. One month after Maddox's first surgery, 7 days after the 2nd surgery (removal of the infection).

Bailee loves her little brother. Unfortunately, she is sick right now and not allowed any where near him. (August 22) So he's missing out on her special kisses.

And here is a picture of Maddox from today. He is such a sweet baby! We are so grateful to have him home, and our family all together.

So we brought Maddox home, again, on Wednesday. He is a different baby from when we brought him home the 1st time. He isn't as fussy, his color is better, and he just seems healthier. Some of that comes with time, but I feel like most of it is having the infection gone. He still breathes pretty fast, but that too should slow with time.

We are doing this whole new born thing backwards though. He sleeps pretty much through the night right now, but when we get the feeding tube out that will change. We will have to get up every 2 hours and feed him. One of these days we'll get into a routine and figure all of this stuff out. Right now we are giving him meds 6 times a day. 4 of those times are via a pic line using a syringe pump. Yikes! So much for never wanting to be a nurse.

Seriously, we are so grateful to be home and to have Maddox finally here with us. We've got a long road ahead of us, but I figure if we could make it through the past 6 weeks (and we did) than we can handle whatever is coming.